I wrote about gluten intolerance and celiac disease (the most severe form of gluten intolerance) in the front part of my most recent cookbook, The Ice Dream Cookbook: Dairy Free Ice Cream Alternatives with Gluten Free Cookies, Compotes, and Sauces (Planetary Press, 2008). I wanted to educate people about these conditions and the problems that can arise from eating gluten grains. Even though I don’t have celiac disease I want to learn as much as a I can about it so I can help more people who do have it and help people avoid health problems that can be prevented.
What do you know about gluten intolerance?
Gluten intolerance affects at least 15% of Americans (1 in 7 people). Celiac disease, the most severe form of gluten intolerance, affects at least 1% of the population (1 in 133 people). Many more may be affected---but not yet diagnosed.
How prevalent is it?
According to Dr. Kenneth Fine, an intestinal researcher at Entero Labs, as many as 42% of Americans may have the gene for gluten sensitivity. That means as many as 1 in 4 Americans may have some delayed allergic reaction to gluten––a protein found in wheat, barley, rye, and oats that have been cross contaminated in harvesting, processing, or packaging. Gluten sensitivity may also be a factor in at least 77% of all cases of autoimmune disease.
The projected number of people with celiac disease in the United States is close to 1.3 million. However the vast majority of people with celiac disease are unaware they even have it. Even if you don’t have celiac disease, you may have an intolerance to gluten and it may be undermining your physical, mental, or emotional health.
Unlocking the Mystery of Wheat & Gluten IntoleranceI recently watched a video called Unlocking the Mystery of Wheat & Gluten Intolerance, a 2-plus hour DVD of the June 17, 2006 seminar at College of Du Page, Glen Ellyn, IL. In it, Dr. Thomas O'Bryan, DC, CCN, DABCN, gives an overview of the research linking gluten intolerance to a long list of autoimmune, neurological, behavioral, and skin disorders. He explains how gluten intolerance can trigger auto-immune diseases, attention deficient disorders, epilepsy, Multiple Sclerosis, migraines, chronic fatigue syndrome, depression, osteoporosis, and other health problems in sensitive individuals.
Here’s what two reviewers on Amazon said:
“Dr. O'Bryan's heavily referenced, easy to follow research overview is crucial to grasping the scope and severity of gluten sensitivity including neurological issues. It extends far beyond celiac disease and is literally a safety requirement in the investigation of gluten sensitivity and celiac disease…”
“This is a DVD worth watching, especially for new Celiacs like me -- I became even more vigilant about staying away from wheat in any form. It would be an eye-opener for people with unresolved health problems. Its extensive research references clearly show a world-wide concern about the effect of Celiac disease beyond digestive problems…”
The iceberg
Drawing on research from the Brittish Medical Journal, Dr. O’Bryan explains how the tip of the iceberg consists of people who have the classic form of celiac disease. They have the gastrointestinal symptoms and they have an endoscopy and blood test that come back positive for atrophy of the small intestines. However, the largest portion of the iceberg is under the surface, unseen, and largely unrecognized.
Eight times more people who have celiac disease have no gastrointestinal symptoms. They silently suffer with this condition. These people often have symptoms outside the intestines so their doctors don’t think to test for celiac disease.
Underneath that part of the iceberg you have people with latent celiac disease. They have the potential to develop the disease. They may be genetically susceptible and may even have some symptoms, but their condition has not progressed so far as to show up on a blood test.
Missing diagnosis
“The rate at which celiac disease is diagnosed depends on the level of suspicion for the disease [Am J Clin Nutr 1000: 69:354-65].” If you suspect and test for it, the rate of diagnosis goes up. So if your doctor doesn’t think you have celiac disease because he’s not read up on the research and is unfamiliar with all the ways the disease can manifest, he may neglect to have you tested for it.
In the U.S. it takes an average of 11 years for a person with symptoms to be diagnosed with celiac disease. One of the reasons is that “Patients with celiac disease may have the silent or atypical form (without gastrointestinal symptoms) and the condition may present outside the intestines [BMJ, Apr 2005].
“Every time the disease is clinically diagnosed in an adult, that person has for decades had the disease in a latent or silent stage [N Eng J of Med, Oct 23, 2003, 1673-4].”
Celiac disease is on the rise
A recent study found that the prevalence of celiac disease has increased 4 to 4.5 times since the 1950s, and that undiagnosed celiacs have a four-fold increased risk of death compared to non-celiacs.
What is celiac disease?
Celiac Disease in an inherited autoimmune disorder that affects the digestive process of the small intestines. When a person who has celiac disease consumes gluten, the individual’s immune system responds by attacking the small intestine and inhibiting absorption of important nutrients. The longer this goes on the more damage is done to the intestines and other body tissues.
Know someone with osteoporosis?
According to research published in the Archives of Internal Medicine, the prevalence of celiac disease in people with osteoporosis is high enough to warrant blood tests for all patients with osteoporosis or osteopenia. Why is this? Osteoporosis takes years to develop. Dr. O’Bryan explains that if you have celiac disease, osteoporosis starts as soon as you start eating gluten. You never build a high bone density. So you get to age 40 or 50 and you have osteopenia.
According to the Brittish Medical Journal, all patients with osteoporosis should be screened for celiac disease. But don’t expect your doctor to know this and test you. You have to be proactive and find a doctor who will test you.
There’s more
The video, Unlocking the Mystery of Wheat & Gluten Intolerance, explains the link between gluten intolerance and autoimmune thyroiditis, type II diabetes, depression, and other conditions that warrant screening for celiac disease. I won’t try to summarize the entire video. If you want to learn more about gluten intolerance and celiac disease, if you have health problems that have escaped diagnosis, and if you want to know more about how to recognize symptoms that may be indicative of gluten intolerance, I recommend you get a copy of this video and recommend it to your health care practitioner. It explains about what tests you ask for and the second section of the video includes information about shopping and cooking presented by gluten free chef, Sueson Vess, author of Special Eats: Simple, Delicious Solutions for Gluten-Free & Dairy-Free Cooking, a cooking video called Gluten Free & Dairy Free Cooking with the Seasons, and a gluten-free, dairy free web site with recipes, resources, www.specialeats.com
To order copies of this video or Sueson's cookbook and cooking video, click the title links above or the Amazon icons below.






